An Update on the Twinnies!

Oh where do I begin with these two little squirts living inside of me?

Well. There has been some complications… unfortunately.

First off, with identical twins, there is a rare chance of getting Twin to Twin Transfusion Syndrome (TTTS).  Let me start by explaining this syndrome. And by no means am I a doctor, this is just what we have came to figure out.

What happens with TTTS is when twins share a placenta (which every set of identical twins share a placenta), the blood flow and other things in the placenta can get off balance in regards to how everything flows to each twin through all the vessels, and ends up all in one twin, and the other twin becomes anemic and low on nutrition, blood, etc. Essentially, one twin starts ‘stealing’ from the other.

There are 5 stages of TTTS. Stage One starts when the thief starts taking amnionic fluid from the donor twin and ends up with way more than normal, and the other twin ends up with almost nothing surrounding her.  Stage two is it starts effecting the kidneys and bladder, and the weight difference between the two starts to change drastically. Stage 3 starts effecting the heart and other organs, and stage 4 & 5 are just awful outcomes…. ending in death of one or both twins.

My beautiful babes are currently at stage one. Our biggest scare was at about 22-24 weeks…. Baby A ended up with 11 cm of fluid (3-9 cm is the normal range for twins) and Baby B was only at 1.2 cm. With a difference of almost 10 cm. That was when we were given multiple options, and out of all of them, bed rest at home was the best option we could have hoped for. The others were scary and would have made the outcome of the babies very unknown. But instead of making a drastic decision of surgery, delivery or hospital bed rest, the doctors told us to wait until the following week to see how the ultrasound goes. And then we’ll discuss our options.  “Until then, bed rest at home from now until delivery, and try and relax and not stress.” Okay. Right.

Thankfully, the bed rest had worked, and the fluid had reversed. A was just under 10 cm of fluid and B was almost to 3!!! But we weren’t out of the wood works yet.  We still had to keep a close eye on the twins until they are born. But at that point, our goal was to make it to 28 weeks. 28 weeks is the Mount Everest of weeks in premature babies as after that, brain bleeds are less likely to occur.

But I am happy to say, we have passed 28 weeks and currently I am 30 weeks today!! I am still on bed rest. Which really stinks, but I’m willing to do what needs to be done.

Currently, A is 3 lb. 8 oz and B is 2 lb. 9 oz. B is slowing down on the growing, which made me nervous at Thursday’s appointment. But the doctors didn’t seem to be too concerned. They think we’ll be fine until at least 32 weeks, but at 32 weeks, we’ll check their growth (growth gets checked every other week) and decide from there if another 2 weeks is doable or if delivery is the better option for the babies.

Right now, I am having problems. Just pain in the ass problems. First of all, I failed both of my glucose tests. Which means I technically have diabetes. So now… I have to go see a dietrician and take home a stupid finger poking machine. I also have to fast as soon as I wake up for two hours, and 2 hours after each meal and poke my finger at the end of each fast. Take the machine with me to each high risk appointment and each dietrician appointment to make sure my blood is okay. But what makes me most angry, is all the doctors said I would probably fail both tests because of the twins. It’s not an accurate test with multiples. I didn’t fail by much, hardly anything actually. But they still have to go through protocol and I have to follow the steps following the failed tests. Awesome.

Then at Thursday’s appointment, they found protein in my urine. Seriously… Why not? I mean really… I have so much on my plate with this pregnancy as is, let’s just throw that on top of it. Ready to hear what I have to do for this? Oh, it’s great. I have to pee in a giant jug for 24 hours, keep my lovely urine on ice for the full 24 hours, then take this said jug o’pee to the OB appointment, get more blood work done and see if I have preclampsia. But once again, the doctor said she thinks this is a fluke because I don’t have any of the other symptoms. So this jug thing is just to make sure I don’t have it, and protocol.

Seriously, you should see this thing!!  It’s disgusting! I pee in this giant measuring cup, and then pour it into this giant brown jug. Ya can’t miss it. I really can’t wait to carry in my giant brown jug o’pee into the doc’s office, walk past all the other patients in the waiting room and just hang out with my pee until my name’s called. AH!  I might as well have a giant sign that says “Hey!!! This brown jug here is my pee!!! 24 hours worth of it!!!”

Jealous? I figured. So that’s the things I’m dealing with right now. Along with my bed rest, twice a week appointments with my high risk doctor and my once a week appointments with the OB, the once or twice a week appointments with my dietrician, I now get to pee in a jug for 24 hours.

As much as I love seeing that my twins are still growing well on the inside, I am ready for this pregnancy to be over. It has been nothing but an emotional roller coasters and crappy luck.

But I will say, we got to avoid the fetal surgery, which is better than all the ‘bad lucks’ combined.

On the positive side, I can’t wait to meet them. My girls are fighters, especially B. And I can’t wait to let everyone know the names we have chosen for them. :)  It’s killing me not telling, but I have to have some surprise at the end! Although, we still need A’s first name. We have a few ideas, but nothing set in stone yet.

Hopefully the next post regarding the Twinnies or this pregnancy in general, will be a positive one! I’ll try to update once or twice a week to keep you all filled in.

Trackbacks

  1. […] It just sucked sleeping in another place, another bed, getting poked and prodded over and over, peeing for 24 hours again into a giant jug, laying in super uncomfortable positions to get blood pressure checked every 5 minutes!! {Which by […]

  2. […] because she has a hole in her heart {murmur} that she received from the TTTS when they were still in the womb. Since she was the one taking all the nutrients and fluid from Varah, her heart had to work over […]

%d bloggers like this: